“I was sad that I had no shoes, until I met a man who had no feet.”
These days her biggest concern is the canvas spiral collar that creates the seal around her neck. She used to have to replace them every few months after they wore out and stopped keeping a seal. Back then she could get them for a few dollars each, but she recently bought two from Respironics for a little more than $200 each. She said the company wouldn’t sell her any more because they only have ten left. For years she’s been trying to find someone to make a new collar. She uses Scotch guard on her current supply and tries not to move her neck around, hoping to make them last as long as possible.
I asked her what happens if she runs out. “Well, I die,” she said, in a matter-of-fact tone.